PALL – Ensuring care until the end for everyone: palliative care as a public health priority
Organisers
EUPHA Health Services Research Section
European Association for Palliative Care (EAPC) Public Health & Palliative Care Reference Group
RAPHAEL project – IntegRAting a Palliative Care ApproacH for PAtients with HEart FaiLure
This pre-conference frames palliative care as a core public health priority and explores how public health approaches can help ensure care, support and dignity for people facing serious illness, dying, caregiving and bereavement.
Structured around assessing population needs, ensuring equitable access and strengthening supportive social and community environments, the session will discuss current evidence, policy challenges and practical strategies to advance palliative and end-of-life care across Europe.
Building on expert contributions, case-based discussion and interactive exchange, the pre-conference will examine how palliative care can move beyond a specialist clinical service and be recognised as a public health concern linked to quality, equity, social participation and dignity. It will bring together perspectives from public health, palliative care, health services research, chronic disease management, policy and community-based practice.
The discussion will address three interconnected areas:
- population-level evidence on palliative care needs, gaps in provision, and approaches to measuring and monitoring quality of care;
- integration of palliative care into oncological and non-oncological chronic disease pathways, including heart failure;
- community-based responses to serious illness, dying, caregiving and bereavement, including compassionate communities.
Preliminary programme
13:30 – Welcome and pre-conference objectives
Lorena Dini, President, EUPHA Health Services Research Section; Charité – Universitätsmedizin Berlin
Filippo Quattrone, Vice-President, EUPHA Health Services Research Section; Sant’Anna School of Advanced Studies, Pisa
13:35 – Why Palliative Care Is a Public Health Priority: Population Needs, Equity and Health-System Responses
Joachim Cohen, Vrije Universiteit Brussel, End-of-Life Care Research Group
13:50 – Palliative Care Metrics: Epidemiology, Equity and Quality in the European Context
Arianna Bellini, Sant’Anna School of Advanced Studies, Pisa
14:05 – The Economic Case for Palliative Care: Outcomes, Resource Use, Economic Evaluation and Value for Health Systems
Lucia Della Ratta, Sant’Anna School of Advanced Studies, Pisa
14:20 – Integrating Palliative Care into Primary Care: The German Perspective
Ana Ordonez Cruickshank, Charité – Universitätsmedizin Berlin
14:35 – Heart Failure and Palliative Care
RAPHAEL project representative – speaker to be confirmed
14:50 – Compassionate Communities: Towards a Global Map of Community-Based Palliative Care
Libby Sallnow, Marie Curie Palliative Care Research Department, University College London
15:05 – End-of-Life Care and the Social Contract: Policy and Health-System Implications for Europe
Dheepa Rajan, European Observatory on Health Systems and Policies, WHO European Centre for Health Policy
15:20 – Coffee break
15:40 – Introduction to the structured priority-setting exercise
Arianna Bellini, Sant’Anna School of Advanced Studies
Ana Ordonez Cruickshank, Charité – Universitätsmedizin Berlin
Lucia Della Ratta, Sant’Anna School of Advanced Studies
Brief presentation of the working method, guiding dimensions and expected outputs.
15:45 – Parallel working groups
Participants will work in mixed groups to develop one priority action for advancing public health palliative care in Europe.
Discussion will consider population needs and data gaps; integration across services and care pathways; equity and underserved populations; compassionate communities; economic evaluation; implementation; and policy.
Each group will develop a priority action addressing:
1. the main gap or unresolved challenge;
2. the populations, services or health-system outcomes affected;
3. the evidence, data, policy or implementation action required;
4. the added value of European collaboration;
5. a concrete next step for the following 12–24 months.
Each group will appoint a rapporteur and prepare a three-minute presentation.
16:15 – Presentation and discussion of group priorities
Groups will present their proposed priority actions. The plenary will compare and cluster the proposals, identifying common themes and potential areas of convergence.
16:40 – Collaborative Prioritisation of Research and Policy Actions
Chair: Tit Albreht, EUPHA President, National Institute of Public Health, Slovenia
Moderation: Lorena Dini and Filippo Quattrone
Discussants: Joachim Cohen, Libby Sallnow, Dheepa Rajan and RAPHAEL project representative
Participants will collectively assess the proposed priorities according to potential public health impact, feasibility and European added value. The session will conclude by identifying a limited number of shared priorities and possible next steps for European collaboration.
16:55 – Closing remarks and next steps
Tit Albreht, Lorena Dini and Filippo Quattrone
17:00 – End of the pre-conference