Pre-conference: Exploring the European Health Data Space: a journey guided by the HealthData@EU pilot project  


Tuesday 12 November, 13:30 – 17:00 Lisbon time (starting with network lunch at 12:30)


Organised by

HealthData@EU pilot project

Background

The EHDS aims to establish a common secure framework across Europe to facilitate the reuse of health data for research, innovation, and public policy purposes. Launched in October 2022 and running over two years, the HealthData@EU pilot initiative, with its 17 partners including national data platforms and research infrastructures, is at the forefront of this transformation.

Their mission? Develop and deploy an EHDS-like IT infrastructure for secondary data use and validate use cases for cross-border research projects. The pilot project addressed every aspect of the user journey for secondary health data use, including data discovery facilitated by a metadata catalogue, the development of a common data access application form for permit requests, setting interoperability and quality control standards for data preparation, and data usage.

During this preconference, the project partners will showcase how this innovative initiative contributes to unlocking EHDS's potential for secondary health data use. They will guide you through your user journey in the new data space to uncover its benefits for you, European citizens, patients, and policy makers. By sharing key achievements, insights, and challenges encountered throughout the project, we aim to pave the way to unleash the potential of health data in Europe!"

Programme

The programme of the pre-conference will be available shortly.

Registration

The pre-conference is financially supported and the registration fee is only EUR 20. Networking lunch and refreshments are included.